Friday, February 26, 2010

25 Feb - Update on Sarah

Sarah has had a pretty rough time recently and is still struggling with fatigue, intermittent nausea and low appetite. She's hanging in there but is really tired of not "feeling right." This past weekend we think she caught a stomach bug and because she couldn't keep food or more importantly her tablets down, we had to take her in to the hospital for IV fluids + medicine. She felt better the next day and ended up spending just two nights in the hospital. Her liver function numbers are currently high out of spec and her tumor markers are the highest they have ever been, although we have good reason to believe they are coming back down due to the Tykerb treatments (we expect to get new numbers next week). And, Sarah is about half way through her pituitary radiation treatment, which is probably contributing to her fatigue.
The toughest thing for Sarah right now is the feeling that she might not ever "feel right" again since we really don't know exactly what's causing the general unwell feeling. We just learned today that her endocrine levels are ok - we had assumed the problem was there and that relief was in sight by adjusting the endocrine drug levels. Now we need to reconsider what to push for next. Maybe a liver and pancreas MRI. Sigh...

4 comments:

Jessica said...

Thanks for the update. I figured you weren't feeling well yet. That is just too bad. "BOO!" to that general unwell feeling. OK, any better now? :) We're rooting for you as always, Sarah.

Anonymous said...

Very sorry to hear that Sarah is feeling so bad and down. Not that I know anything, but doesn't it seem likely the combination of chemo and radiation is a main cause? I've heard either one can be debilitating. Sorry to hear about the high numbers and am really hoping with you that they come down. Hang in there Sarah, our thoughts are with you. If I haven't told you, the baby is a boy, something you will have to give me some insight into when you are feeling better. Sharon

Anonymous said...

OH guys, we are thinking of you so often ... I will continue to keep you in our prayers and check for updates. Your London friends/fans are pulling for you!
Jen & Dan

Anonymous said...

Hang in there! It is no fun to not get over the "not feeling right" feeling. We are always thinking about you and praying for progress.
Paige & Trey