Wednesday, December 15, 2010

15 Dec - A Different Hope

Today was a tough and very emotional day. After we arrived at the Cancer Center and got Sarah settled, the doctor came in to tell us that he did not think we should move forward with the drain procedure. After finally being able to review the CT scan of her liver in detail, and after consulting a few other doctors, he said that the procedure would not help lower Sarah's bilirubin and would instead cause considerable discomfort because he'd have to go in through the rib cage vs. under it as he'd expected. It seems the tumors in Sarah's liver have caused too much damage and drainage of bile from healthy liver cells was not ultimately the problem anyway.
For all the years of Sarah's cancer, our life has been centered around hope - hope for a cure, for the next chemo to work better, for another procedure to improve her situation. There was always a set of options and possibilities. Now, all of a sudden, we're out of next things. With nothing around the corner to pin our hopes on and no treatment possible anymore, we have to accept that the course is set and Sarah's life will end soon.
Now Sarah and I are focused on a different hope - that we can make her as comfortable as possible, and that we can open our hearts and stay close as a family, sharing as much love and compassion for each other as we can so that it takes at least a little bit of sting out of the sadness that we all feel. That's easier said than done and it's hard for me just writing it right now, but we will do our best. So that we can face this together, we brought the boys fully in the loop today and they are starting to digest it all. I asked Sarah today whether I could do anything special for her. She said, "Just be with me." - and that's exactly what I intend to do. For all who are praying for us, please ask for strength, comfort and peace.

31 comments:

Anonymous said...

I love you very much sarah andmy prayers and thoughts are with you and for your family. Love Aunt Barbara

aggie bianchi said...

Hi Sarah, I am Candie's Jaegers MOM(Aggie) from Dr Nibrinsky I have been praying so much for you and your family. God knowns {You of all people are not giving up}. Some times it's our body that can't do much more. You are a stronge women and your sons & Husband should be so PROUD OF YOU. Blessings,Peace The Bianchi Family of St. Charles

Anonymous said...

Sarah,
I am praying for God's peace and comfort during this part of your journey. May strength and love surround you.
Please let me know if there is anything I can do. You are such an inspiration for all of us.
I love you and will continue to keep you in my heart and prayers!
Love,
Aunt Marcie

Melanie Hopper said...

Alan and Sarah,

There are no words, I am so very sorry that there are no more "next things" to have as an option. I will pray for peace and comfort.

Love,
Melanie Hopper

Jen said...

Melanie is right--there are no good words. We keep your family in our thoughts and send prayers for comfort and understanding. May Peace fill your hearts and love surround you.
Nov 2000 Jen H.

Anonymous said...

Words can not describe the sadness I felt reading Alan's last post. You have been such a part of my life the past 10+ years along with the other Nov 2000 group. We have all been through alot together. This will be the battle that touches our heart forever. Thank you for sharing yourself with us.

May God welcome you with open arms and give your family the strength and comfort it needs.

With much love,
Joyce (Nov 2000)

Sally Mohamed said...

I am so blessed to have had you in my life Sarah. I'm wishing for peace & comfort for you and your family.
Love,
Sally

Ami said...

May the road rise up to meet you

May the wind be ever at your back

May the sun shine warm upon your face and the rain fall softly on your fields

And until we meet again, May God hold you in the hollow of his hand

Unknown said...

Wishing you all comfort, peace, and solace during this incredibly sorrowful time. Sarah- your strength, determination and courage have been inspiring, and will continue to be so not only to me, but to Alan and your boys too. Thanks for being an inspiration to us all.
With affection,
Julie (Nov 2000 group)

Anonymous said...

Alan and Sarah,
I am so sorry to have just learned of this blog. It has touched me deeply and I feel such love for you and your family. This blog is one of the greatest gifts you will leave your children. It documents the love and the true meaning of family that will live forever. Thinking of you now and in the future days.
Love to you guys,
Ellen (Rein) Pierce

Alden said...

Sarah,

I admire you for how you have fought your disease over the last five years while raising your two wonderful kids at the same time. I will continue you to pray for you, Alan, and the boys.

Love,

Alden

Anonymous said...

Dear Sarah and Alan,
I am a friend of Amy and Joe and have just read Alan's latest blog .
Please know that you will all be in my thoughts and prayers.
May God give you peace and your family and friends give you the love and support that you will need.
Love,
Lolri

Anonymous said...

Sarah, I remember u from St. Martin's and was in the same class with Thomas. I am so sorry for all u and your family have been through. To all of u,I wish u peace and comfort through this very difficult time.

Jill Vedros Mutavdzic

Jessica Ames said...

Oh, I am so sorry Alan and Sarah. I hope you will be able to find much peace as a family in the coming days and weeks. Please let us know if there is anything we can do for you all.

Anonymous said...

My prayers continue from NJ. You do not know me, however I am so touched by your fight of this horrible disease and family love.
Donna

Sylvia said...

I was hoping to better news when I checked your blog today. I am so sorry there aren't any other options right now for you. We will continue to keep you in ours prayers. I have always been so impressed with your outlook on your situation. You have a GREAT family! Keep sticking close together.

jtdenkmire said...

I am so sorry. I wish you only peace and comfort - and if there's anything I can do let me know. Be good to each other and enjoy your remaining time together. It's all I can say.

Cherie said...

These words from a previous post have never been truer:
What cancer cannot do:
It cannot cripple LOVE
It cannot shutter Faith
It cannot corrode Hope
It cannot destroy Peace
It cannot kill Friendship
It cannot suppress Memories
It cannot silence Courage
It cannot steal Eternal Life
It cannot conquer the Spirit.
Thinking of your family and the many joys you have shared.
Peace, Cherie Wamser

Anonymous said...

You continue to be in my prayers... May you be enfolded in God's love,
Gwynne +

Anonymous said...

Sarah, You don't know me (I just recently met Alan at Sam's basketball game) but I've always admired your strength and dignity. You've touched many people, some of which you don't even know. My prayers are with you and your family. I pray for peace.
Mary

Anonymous said...

Sarah,

My beautiful cousin, I have always admired you so much. I am praying for you, Alan and the boys to have comfort and strength. You have been so strong through everything and I am so proud of you. I love you very much.

Love,
Gabby

Anonymous said...

Dear Sarah and Alan,
We are so sad to hear the latest ... you are in our continued prayers and thoughts for peace, courage, and strength -- all of which you have demonstrated you already have. I am sure I cannot imagine what you are experiencing, but I hope it helps in a even a tiny way to know we are thinking of you and the boys.
Love Jen & Dan

Unknown said...

Sarah, I will always think of you as the beautiful and strong woman that you are. Alan, while we have not met, I have gotten to know you through your postings. You serve as a model of solid grace for me -- and for us all.

Your family is in my thoughts and prayers.

Claire Snyder (Shelby's sister)

Anonymous said...

Alan and Sarah,
We continue to pray for you and your boys at this very difficult time. Your strength and courage that you have shown during this battle are amazing. So is your love and support for one another - truly a model for us all. I know there is nothing that anyone can really say or do, except to let you know you are loved and are not alone. We pray for peace and comfort for you all.
The Peters Family

Eone Moore Beck said...

I LOVE YOU SARAH!!!! You will see your mother and father soon and before you know it, we will be up there with you, and Ben and Sam are in the best hands and we will all look out for them forever! I love you and am so very, very proud of you! You have faced every moment with grace and dignity and courage. I am a better human being because you have touched my life. I will forever treasure the moments with you on October 17th. Thank you! GODSPEED. And SEE YOU SOON.

Anonymous said...

Sarah and Alan- I have always been in awe of the depth of the love between you and Alan, as well as what amazing parents you are. You will live in all of our hearts but most especially through the legacy of those beautiful boys. You have fought this harder than I could imagine possible and are a testament to the the strength of the human spirit and as others have said so well to courage, dignity and the power of love. I am so glad and I thank you and Alan for being part my life and being an inspiration to me and a personal hero/heroine. I wish you and Alan and the boys abiding peace and to be absolutely enveloped by the love we all have for u and the family. You are in my heart and I will never forget you. Sharon

Anonymous said...

Sharon could not have said it better. You are my heroine and I try to be as good a person as you. Honestly, you are one of the few people (maybe the only person) I know who is always herself. I feel like such a lucky person to know you and to have spent some of the more difficult years of my life with you. I would not be the same person today without your influence. You will always be a big part of who I am and I will try to be as honest, kind, compassionate and straightforward as you. I will never be as smart or funny. I love you so much and wish you, Alan and the boys peace. L

Mignon Doran said...

Sarah,
I am praying for you,Alan and Ben and Sam. May God comfort all of you with his grace,love and peace.
Love,
Aunt Nonnie

jefdoran said...

Sarah this is your cousin Jeff. I remember the good times we had in Delaware at the beach with You me and Thomas, Except for those darn Horse shoe crabs. You are such an inspiration to us all and such a great mother it saddens my heart that you would be given such unfair odds. I have always thought kindly of you and wish you and your family peace and love in this very tough time, I don't feel words can portray how deeply I empathize with your family in these difficult times. I love you all and wish I could help ease your pain. Love always your cousin Jeff

jefdoran said...

Sarah if you or Alan would ever like to talk to to me and my family please feel free to call 352-257-5941 I would love to hear from you and your family, Love always your cousin Jeff Doran. Peace be with you and your family, You will be in our prayers Gdoran2@tampabay.rr.com

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